Though at least 11% of women in the U.S. have endometriosis, many suffer in silence without answers or treatment. Some believe it’s just a normal part of having a period. Others may be too embarrassed to talk with a doctor. “But, there are many ways to manage the pain,” says Jackie Werner, MD. “And the good news is that as more people become aware of the disease, more people are getting the treatment they need and deserve.”

What Is Endometriosis?

Endometriosis is a condition that happens when the endometrial tissue that normally lines the uterus forms outside of the uterus (on the pelvis, ovaries, fallopian tubes, bowel or bladder).

It’s not clear what causes endometriosis, but genetics, hormones or issues with menstruation may play a role.

"Anyone who has menstrual cycles can get endometriosis," explains Dr Werner. "However, it's more common the longer a woman has her cycles. It is most frequently diagnosed after the age of 25."

Endometriosis Symptoms

Find Help for Endometriosis

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The most common endometriosis symptom is pain. The level of pain and when it happens varies from person to person. People with endometriosis may feel pain during:

  • Bowel movements
  • Menstrual periods
  • Sex (or after)
  • Urination

And symptoms can range from minimal to severely debilitating.

Endometriosis and Fertility

Though some women with endometriosis have no problems getting pregnant, for others, it may be harder. In fact, researchers estimate that about half of all people with endometriosis experience infertility. Since the condition can block or scar fallopian tubes, fertilization can be a challenge. Additionally, women with endometriosis are more likely to have lower egg counts.

“If you have endometriosis, and are having trouble getting or staying pregnant, contact your doctor,” suggests Dr. Werner. "There are many treatment approaches to help become and stay pregnant."

Treating Endometriosis

Treatment for endometriosis depends on many factors, including symptoms, age, medical history and the desire to become pregnant. While there’s no cure, treatments are available to help relieve symptoms and other problems, such as:

  • Hormone therapy to help relieve symptoms for those not trying to get pregnant
  • Nonsteroidal anti-inflammatory drugs (NSAIDS) to reduce pain, especially during menstrual periods
  • Surgery to remove the endometriosis, or hysterectomy, when other methods aren’t working

“Endometriosis responds well to most hormone treatment, and thankfully, most women have limited or no endometriosis symptoms after menopause,” says Dr. Werner. “However, some treatments can increase the risk of other conditions, including peritoneal (abdominal tissue) cancer and heart disease. So, keep up regular preventive visits.

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